We are greatful to FIND A CURE. "Findacure is a UK charity that is building the rare disease community to drive research and develop treatments" (source: Find a Cure website).
This website on BIID has been possibly only thanks to the FIND A CURE Mentoring programme. Have a look here for the next edition of the programme: https://www.findacure.org.uk/patient-group-mentoring/
Thanks to this mentoring programme, Anna and Cassie have worked with Ola in developing the website contents. Ola's experience with education on rare diseases has been invaluable in changing the contents and using the most effective language. We will always be indebted to Ola for her patience, suggestions and dedication!